Walk a Mile in My Shoes - EB Benefit a Huge Success

I am making this post a bit late, but it's very important to me ...


The last week of October is National Epidermolysis Bullosa Awareness week. In order to help raise awareness for this relatively rare skin disease, a series of events were held the weekend of October 27-28. On Saturday night Trinity and Nala brought their wildly popular Trinala show to the Musical Alchemy event pavilion. On Sunday, three live performers - all dear friends of mine - delighted us with hours wonderful music. Grace and Lyndon opened, followed by hours of DJ music, with gifts and prizes generously donated by friends. And finally, Kyle Beltran took us into the wee hours of the night with his eclectic mix of jazz piano and vocals.

The events were a huge success. An estimated 500 people came out and received information on EB, and its devastating effects on children and families. We raised more than $1100 which was donated to two EB charities!

I would like to encourage you to find out more about EB by visiting the following web pages. I can't imagine a more difficult genetic disorder to have, and these kids could really use some help. Please consider visiting these web sites:

• EB Medical Research Foundation (EBMRF)
• The Dystrophic Epidermolysis Bullosa Research Association of America (DebRA)

I would like to thank everybody who contributed to making the Walk a Mile in My Shoes - EB Benefit a huge success. Thank you to the performers and the DJs, thank you to the sponsors, and thank you to every one that came, donated, and learned a little bit about how devasting EB can be. I would like to extend a special thank-you to Grace McDunnough, Lyndon Heart and Kyle Beltran for their wonderful musical performances and heart to help the cause, and to Joslyn Bonetto and Miriam Antonelli for Djing the main event. Thank you to Trinity Serpentine and Nala Galatea for bringing Trinala to my place and helping us raise awareness and money. Thank you also to Fizzy, Mash Mandala, Rebel Hope and Cocoanut Ice for so generously donating prizes. And finally, thank you to my dear and sweet friend Caeleigh Lamington - for first teaching me about EB, and then for giving me an opportunity to make a difference in the lives of some hurting children and families.

Thank you everybody ... I love you from the bottom of my heart!